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Congressman Patrick Kennedy Helps Swing Against SMA - August 13, 2008

Participants in a recent fundraiser in Cranston, Rhode Island fought against spinal muscular atrophy with golf clubs, and a big supporter from the U.S. Congress helped them. Fight SMA&8217;s Rhode Island chapter, Corinna&8217;s Angels, organized the 5th Annual Swing Against SMA Golf Tournament. In attendance was Rhode Island Congressman Patrick Kennedy (pictured to the right ...
http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/364382171/congres...

Family Creates Petition to Support SMA Treatment Acceleration Act - August 13, 2008

Victoria and Bill Strong describe their daughter Gwendolyn as &8220;a bright, happy little girl with a fighting spirit.&8221; That spirit serves her well as she battles type 1 spinal muscular atrophy. To advance the fight against this terrible disease, the Strong family began a letter writing campaign and then created a petition to show ...
http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/335352080/family-...
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