Search ResultsSearch ResultsA Washington Family's Spinal Muscular Atrophy Story- December 3, 2007 There&8217;s a wonderfully written story of a family&8217;s life with spinal muscular atrophy (SMA) published this week in The Olympian newspaper from Olympia, Washington. The article, written by Diane Huber, tells the story of the Lormers and their three year old daughter Kayleigh. Kayleigh wasn&8217;t expected to live past her second birthday, but this ...http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/184465908/washing... Shoe Designer Gives Girl with Spinal Muscular Atrophy the Star Treatment- December 3, 2007 14-year-old Megan Owen of Lancashire, England, is getting a treat that many adult women would give their eye teeth to receive. Megan fascinated with fashion and pretty shoes, the same as many other girls her age. Unfortunately, Megan has Spinal Muscular Atrophy (SMA), making most shoes unavailable to her. Here&8217;s more ...http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/182707348/shoe-de... |