Search Results

Congressman Patrick Kennedy Speaks on Spinal Muscular Atrophy Research - May 17, 2007

At the recent 2007 Fight SMA National Spinal Muscular Atrophy Conference, Congressman Patrick Kennedy of Rhode Island addressed the attendees about spinal muscular atrophy research funding and the SMA Treatment Acceleration Act. The proposed legislation, developed through a collaborative effort between Fight SMA, the SMA Foundation, and Families of SMA, would establish a ...
http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/117173442/congres...

Fight SMA's Martha Slay Discusses National Spinal Muscular Atrophy Conference (Podcast Episode 3) - May 12, 2007

In Episode 3 of the Fighting Back Podcast, our Steve Mullen talks with Fight SMA President Martha Slay. She discusses being the &8220;Original FighterMom&8221;, and the recent Fight SMA Annual Spinal Muscular Atrophy Conference, The Good Fight. This episode is the first in a two part conversation with Martha. In part ...
http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/113884956/fightin...

An Update on the Fight Against Spinal Muscular Atrophy - May 11, 2007

Sometimes it&8217;s hard to see turning points until you&8217;re past them. We here at Fight SMA hope that we&8217;re at one now. Spinal muscular atrophy is the leading genetic killer of children under two, and currently there&8217;s no cure. However, the National Institute of Neurological Disease and Stroke (NINDS) of the ...
http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/114140080/an-upda...

Race a Duck for Spinal Muscular Atrophy - May 11, 2007

If you&8217;re in the Westfield, New Jersey area, or even if you&8217;re not, you can participate in an event that puts the &8220;fun&8221; in &8220;fundraiser&8221;. Patrick&8217;s Buddies, a chapter of Fight SMA based in New Jersey, is holding the &8220;Fight SMA Rubber Duck Race&8221; on Sunday, May 6, from 11 a.m. to 2 ...
http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/112735742/race-a-...