Comments on: A Worthwhile CausePerez Hiltonby: mizz w- May 29, 2008 18- Sarah-I could not agree with you more!!!!!!!!! those comments were disgusting and yes this is a great cause to support ps. karma always comes back aroundhttp://perezhilton.com/2008-05-26-a-worthwhile-cause-67#comment-2273574 by: parker- May 29, 2008 This is such an important and worthy cause....and can be quite personal to those who know who have it ....I know where this charity started and it is very real and sad. Please try and help if you can in any way. Start a fundraiser in your area, help spear head this charity to help small childrenhttp://perezhilton.com/2008-05-26-a-worthwhile-cause-67#comment-2270720 by: Jolie- May 29, 2008 WHAT TO DO: SMA testing at birth should be included in the battery of standardized tests. The sooner you know the sooner you can get proper treatment and care for your child. We need awareness and personally I don't care by who or how - the more people who know the better. Lastly, Money... research needs money.. enough said. GOOGLE: Spinal Muscular Atrophy, SMA Awareness, Spinal Muscular Atrophy Research Googling SMA brought me to this website. ---- My daughter, my inspiration: Jolie.http://perezhilton.com/2008-05-26-a-worthwhile-cause-67#comment-2269946 by: Jolie- May 29, 2008 Another thing you might want to know is that there are FOUR types of SMA! While some of the people on this board may say nasty things, they could actually have it. Type 4 affects ADULTS! Every heard of Lou Gehrig Yep, he had SMA Type 4. Type 3 affects TEENAGERS! Type 2 affects CHILDREN over 2! How would you feel if your child developed symptoms at any of these stages and all the while you were nurturing and planning for an "uncomplicated" future To quote SMA mom: Does anyone care about..http://perezhilton.com/2008-05-26-a-worthwhile-cause-67#comment-2269937 by: Jolie- May 29, 2008 PREVENTION: Genetic testing can determine whether you and your partner are carriers of the recessive SMA gene (or other genetic disorders) before you plan a family. The odds that YOU carry the gene are 1 in 40. How many people are in your high school, workplace or social circle Care to roll the dice If you AND your partner have the gene, you have a 25% chance of having a child with SMA. For me, those odds are too high considering the DEVASTATING consequences for the BABY if heshe has the...http://perezhilton.com/2008-05-26-a-worthwhile-cause-67#comment-2269926 by: Anonymous- May 28, 2008 My husband has SMA Type 2 and has beat all the odds in every way. He turned 43 in February and has a very successful career in banking, homebuilding and other business ventures. You can learn more about him on You Tube, just type in "Lucky Mutant". Even with their physical limits, SMA patients are some of the most sociable intelligent and humorous people you will meet.http://perezhilton.com/2008-05-26-a-worthwhile-cause-67#comment-2256045 by: Kgriff22- May 28, 2008 thanks Perez! fightsma people need to know!http://perezhilton.com/2008-05-26-a-worthwhile-cause-67#comment-2254773 by: CJ- May 27, 2008 Thank you so much for posting this-- I have had SMA for my whole life and it really means a lot when it gets some attention like this. It is a very worthwhile cause, and I thank you so much. To all those who have donated or just shown their support, thank you as well!http://perezhilton.com/2008-05-26-a-worthwhile-cause-67#comment-2254496 by: buttercup76- May 27, 2008 all these digusting comments you people are leaving are terrible! This poor family is going through hell right now and all you can make racial and sexual slures.....what is wrong with you people I hope this little boy makes it to his third birthday and they find a cure so no other parents have to go through loosing a child. My heart is with all these parents.http://perezhilton.com/2008-05-26-a-worthwhile-cause-67#comment-2253387 |