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Feed items 1 - 4 of 4 for May 2007

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Special Mom Fights Against Multiple Diseases (Podcast Episode 5) - May 29, 2007

Andrea Smith keeps busy, and she does it helping seemingly as many people as possible. She&8217;s the latest interview subject in the Fighting Back podcast, and we&8217;re proud to tell the story of this amazing woman. For almost her entire life, Andrea has had epilepsy. Her young son, meanwhile, has accommodative esotropia with ...
http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/120515062/special...

Spinal Muscular Atrophy Kids Video (The Kids of Fight SMA) - May 29, 2007

The video slide show below was created by Jim Vaile and was shown in April, at the 2007 Fight SMA Spinal Muscular Atrophy Conference in Washington, DC. It features images of the children of Fight SMA. They are the reason for our fight. A big thanks to Jim for a great ...
http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/119471334/spinal-...

J. Robbins Speaks on Spinal Muscular Atrophy at Benefit Concert - May 23, 2007

Musician and SMA Dad J. Robbins gave a heartfelt speech last month at a reunion benefit concert of his former band, Dismemberment Plan. The speech, which is on video below that was uploaded to YouTube, was about his son, Callum, and the fight against spinal muscular atrophy. Fight SMA provided literature for ...
http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/118600218/j-robbi...

N.C. Parents Visit Capitol Hill on Behalf of Spinal Muscular Atrophy Research - May 11, 2007

The Charlotte Observer on May 6, 2007 ran an article about the Bolton Family who started FightSMA&8217;s North Carolina chapter, Eleanor and Jack&8217;s Buddies, in honor of their two children who have spinal muscular atrophy. John and Holly Bolton attended the FightSMA Annual Conference in Washington D.C. in April where they visited the offices ...
http://feeds.feedburner.com/~r/spinal-muscular-atrophy-fight-sma-blog/~3/114818770/nc-pare...
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